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Remembering ‘The Advisory Committee on Human Radiation Experiments’ (1994)

August 16th, 2010

From The U.S. Government Office of Health, Safety and Security (HSS)

On January 15, 1994, President Clinton appointed the Advisory Committee on Human Radiation Experiments. The President created the Committee to investigate reports of possibly unethical experiments funded by the government decades ago.

At our first meeting, we immediately realized that we were embarking on an intense and challenging investigation of an important aspect of our nation’s past and present, a task that required new insights and difficult judgments about ethical ques tions that persist even today.

We were granted unprecedented access to government documents. The President directed all the federal agencies involved to make available to the Committee any documents that might further our inquiry, wherever they might be located and whether or not they were still secret.

As we began our search into the past, we quickly discovered that it was going to be extremely difficult to piece together a coherent picture. Many critical documents had long since been forgotten and were stored in obscure locations throughout the country. Often they were buried in collections that bore no obvious connection to human radiation experiments. There was no easy way to identify how many experiments had been conducted, where they took place, and which government agencies had sponsored them. Nor was there a quick way to learn what rules applied to these experiments for the period prior to the mid-1960s. With the assistance of hundreds of federal officials and agency staff, the Committee retrieved and reviewed hundreds of thousands of government documents. Some of the most important documents were secret and were declassified at our request. Even after this extraordinary effort, the historical record remains incomplete. Some potentially important collections could not be located and were evidently lost or destroyed years ago.

Nevertheless, the documents that were recovered enabled us to identify nearly 4,000 human radiation experiments sponsored by the federal government between 1944 and 1974.

Between April 1994 and July 1995, the Advisory Committee held sixteen public meetings, most in Washington, D.C. In addition, subsets of Committee members presided over public forums in cities throughout the country. The Committee heard from more than 200 witnesses and interviewed dozens of profes sionals who were familiar with experiments involving radiation. A special effort, called the Ethics Oral History Project, was under taken to learn from eminent physicians about how research with human subjects was conducted in the l940s and 1950s.

The members of the Advisory Committee were fourteen private citizens from around the country: a representative of the general public and thirteen experts in bioethics, radiation oncology and biology, nuclear medicine, epidemiology and biostatistics, public health, history of science and medicine, and law.

President Clinton asked us to deliver our recommendations to a Cabinet-level group, the Human Radiation Interagency Working Group, whose members are the Secretaries of Defense, Energy, Health and Human Services, and Veterans Affairs; the Attorney General; the Administrator of the National Aeronautics and Space Administration; the Director of Central Intelligence; and the Director of the Office of Management and Budget. Some of the experiments the Committee was asked to investigate, and particularly a series that included the injection of plutonium into unsuspecting hospital patients, were of special concern to Secretary of Energy Hazel O’Leary. Her department had its origins in the federal agencies that had sponsored the plutonium experiments. These agencies were responsible for the development of nuclear weapons and during the Cold War their activities had been shrouded in secrecy. But now the Cold War was over.

The controversy surrounding the plutonium experiments and others like them brought basic questions to the fore: How many experiments were conducted or sponsored by the government, and why? How many were secret? Was anyone harmed? What was disclosed to those subjected to risk, and what opportunity did they have for consent? By what rules should the past be judged? What remedies are due those who were wronged or harmed by the government in the past? How well do federal rules that today govern human experimentation work? What lessons can be learned for application to the future?

Our Final Report provides the details of the Committee’s answers to these questions.

  1. Anonymous
    April 14th, 2011 at 12:15 | #1

    In several historical instances of searches for unethical and often harmful involuntary experimentation, it appears that many of the experiments have not been uncovered, no one has been prosecuted and victims have had a long legal battle for what can be considered minimal compensation. Worse, there are many who are unaware that they are victims.

    It is my hope that in the upcoming search for the records, the *ongoing* vile human subjects experimentation will be uncovered. As a victim, I can tell you that whatever original protocol I was on probably began in the late 1960s. I have a case number at the SAO and several police reports for some of the more recent crimes committed in conjunction with this research – and no justice. Without knowing who is behind the experimentation, it is hard to initiate a lawsuit. In addition, it appears that areas of both State and Federal justice systems are complicit in covering up what can only be called a crime against humanity. The losses suffered as a direct result of the experimentation are many. Worse, there appears to be a behavior modification aspect to this now that would prevent me from doing what I want to do, being productive in ways that I find important, or even feeding my child. The physical damages from this are documented, the psychological damage is permanent.

    I’m tired of taking this to the “court of public opinion.” This belongs in an international court. For once I would like to see some true justice and reparations, but since that doesn’t seem to be on the agenda, then escape from a country that would allow these types of human rights violations in the guise of experimentation is the only solution.

    In the meanwhile, from what I’ve read on my rerouted internet, it appears that there is no one place for oversight of human subjects research done in the US or by US agencies, department, organizations or corporations. Apparently some would believe that this is bureaucracy. Others of us have a very different opinion.

    The OHRP only oversees federally funded research. One would have to know who is sponsoring the research and in my case decoying and deception have been used, though it is traceable – if the justice system helped victims rather than play along. Not all Federal agencies/depts are bound by the Common Rule. As Guantanamo show, the Federal protections might be violated anyway. Meanwhile, each state has different ways to oversee research and different requirements. Privately funded research may not be bound by anything except when existing laws are broken. Who is doing the oversight?

    There is no excuse for involuntary research on humans that is intended to harm. The radiation experiments included some where lack of consent and deception might have been involved, but others in which the researchers knew that the experimentees would be harmed. “Curing” them or giving them medical attention afterwards is not a form of reparation.

    I no longer care for the US. Nobody who had been through what I’ve been through would understand. I don’t ever care to live in this country again. I’m tired of the hypocrisy of the justice system, the researchers and the monkeys on my internet. If you do care about the US, I suggest that you inform yourself not only as to the federal loopholes involved in human subjects research but also the lack of attention to this in state laws, the lack of oversight over private foundations and others doing research with human beings, etc. Most importantly, you should investigate why across the board federal-wide protections and oversight for human subjects has never been passed in Congress.

    If this happened to me, it could happen to anyone who fits the profile. No one has the right to do what’s been done to me and they especially don’t have the right to do things outside the law – since *other* laws were broken.

    Unlike you, I don’t believe in resetting the government. In my case, it is beyond repair. I’m going for the eject button.

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